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Sunday, August 1, 2010

3 more weeks!

I can't believe in three more weeks the girls will be going back to school. Not so sure about whether Maggie will venture off to preschool yet or not, but the other three will be going.

We've been doing some school shopping and getting prepared. The only think left are book bags, lunch boxes, and school uniforms and shoes. The girls are really excited yet at the same time a little nervous with this new journey. I know they will do absolutely fine.

Unfortunatley Maggie isn't any better off from our trip to Cincinnati at the moment. Don't get me wrong I am so happy that she isn't pooping 24/7. But she isn't out of diapers. We basically traded in one problem for another of course. So we get the constant pooping out of the way but add in cathing every four hours to keep her bad kidney from damaging her good kidney. Plus the fact that we aren't quite sure what to think of the motility problems she has been having. Hopefully we'll get the results of that sometime this week and we can get it figured out. If her blood work doesn't show anything we will do a trial of Flagyl and see if it helps at all or not. If that doesn't help then her GI would like to scope and see if this is allergy related. Sometimes allergy cells can get into the esophagus and GI tract and can lead to diarreaha ( a.k.a hypermotility). If nothing shows up with all of that then her GI suggests looking into her motility then. Even so if it happens to be motility related its not going to matter what type of testing we really do because there really isn't much to do to fix it, other then what we are doing now(Immodium and Enemas). If this is the case that will really stink for Maggie. Even though we went to Cincinnati, saw the Colorectal guru guys and went through the whole bowel managment program. It doesn't mean that Maggie still won't have accidents, and we all know how embarrassing accidents are. The older she gets the more its going to matter to her.

I can say if we do manage preschool for Maggie this year I will guarentee that it will be the only grade she attends brick and mortar school. With all of the hassle this has been, trying to come up with ways for diapering, which turned out going to Cincinnati. Then adding the cathing, trying to get a nurse for her to do this, insurance , insurance denials,. Its just not worth it in the end. Its a darned shame because Maggie will have so much to offer the world, yet I find that the world has nothing to offer her.

Saturday, July 24, 2010

Life Flashing Before My Eyes

Yesterday was quite a day. It started off like any day of course. Getting up, getting the kids their breakfast, giving Maggie her meds and then sitting down to my computer to check my emails for the day. I never know who is emailing to ask me whatever question it is they have for the day.

Of course as I sat down to my computer I felt this wave of nausea and thought to myself " Oh goodie, the stomach flu." It started off very mild with some diarreaha( I know to much information), and ended with throwing up once(thank goodness). It was a quick lived stomach flu and that I was very grateful for because if anything, I mean anything, that anyone here in this house gets sick with I'd rather it not be the flu. It doesn't bother me that they throw up. Just when children get sick it doesn't start with them feeling nauseated and walking to the bathroom to do their business. It usually ends up with someone throwing up all over their beds, the floor and all of their toys that occupy the floor. It also most rarely ever starts during the day. Its usually in the middle of the night at 2 or 3a.m when you've just started in a REM cycle and are at your most comfiest.
Anyways, my stomach flu was short lived and I was finally able to stomach some ginger ale. Of course we had a tiny bit left in a bottle and I poured that into my cup and slowly sipped on that. Then later on I thought, what the heck, I'll have a few pretzels. That I did have and was starting to feel better. As fast as I felt better I began to feel light headed and my ears began to ring. I felt as if I were going to throw up and stood by the sink hoping it was just going to pass. I've had that almost going to pass out feeling before and if I stood in one place, breathed, or sat down I was most always fine and it passed. Not this time it didn't.

All I remember was bending down at the sink and that was it. All of a sudden I was laying on the floor starting up at the ceiling. It was as if I were just waking up in the morning and was looking around the room. Except I wasn't waking up from a full night's sleep. I was laying on the floor in the kitchen with my husband calling my name .. Tracy, Tracy. The first words out of my mouth weren't " What happened, or "Where am I?" or anything like that. The first words that came out of my mouth were" What???!!!!" Then I quickly got up on my feet and walked into my bedroom and layed down.

After everything was all said and done. I laid in bed with Maggie and just cuddled with her. I felt as my life flashed before my eyes. One minute I was at the sink and the next minute I was on the floor. I don't remember a thing. It was like as if I had went to sleep and woke up. I will admit, I know that people pass out all of the time, but it sure did scare me into thinking how limited my time on earth is here. What if that had been something more serious and I didn't know it?
I wish I could of said I saw a bright light, or an angel, or the Lord, but I didn't. I don't even remember anything going black. It was just crazy,and scary all at the same time.

It also scared me into thinking about who would take care of Maggie if I died? Tim tries to help but cathing a little girl and doing enemas make him feel uneasy. I'm the one who pretty much is in control of her care, making sure that she goes to her doctor appointments, her medications, scheduling surgeries, etc. I know Maggie's meds and enema recipes by heart ( though I do have them written down too). Ugh. At the age of 34 I shouldn't have to worry about these things. I should be enjoying life with my children not worrying about things like that. But I do unfortunately.
I wish God knew what he was doing. If he gave me a little child with health problems then He should at least give me good health at the minimum so that I can take care of her.

Oh well, I move forward and keep going. As my mother in law said " I'm one tough cookie". I'm not sure if I hit my head as it doesn't hurt, but between my shoulders and a part of my bottom. I'm sore.

Friday, July 9, 2010

How the summer flies by

Wow! All I can say is I can't believe how much time has flown by already. The girls have had so much fun this summer. They were in the Alice in Wonderland play. Which by the way they did fabulous. They worked so hard on that while Tim and I were gone with Maggie in Cincinnati.
That all went well too. I always enjoy going down there. Cincinnati is such a live and bustling city. It just seems to interesting. More so then the little island I live in here in Corry, PA.
Anyways our trip yieled answers and of course new medicines, procedures and equipment. I'm finding out that we need more room to live in and store stuff. Maggie just keeps us on our toes every day. She was a trooper through all of the testing and such. Mommy had to learn how to cath and do enemas all in that 10 days we were gone. There was even a moment that I had when I broke into tears because I was just so frustrated with it all, and my sweet, sweet little girl looks up at me and says " Smile, mom." So I looked at her and smiled and she then turns and says, " See, mom, I knew you could smile." With a bright beautiful smile on her face. She was the one going through all of this stuff and she was telling me to smile. Bless her little heart. I just hugged her and we laid on the hotel bed and cuddled. God has given Maggie such a beautiful personality. She has to have it to get through life.

As to the fun stuff we've been doing since we've gotten home. The girls continue to go to swim lessons, gymnastic lessons. We go to the lunch time at the Y for lunch and swim. Today we went to the library to check out some books. The girls always enjoy going. They really do. We're hoping to go see the play Annie Go Get Your Gun, which is put on by the Community Play Theater.
The girls cheered on their friend Abbey this year for Little Miss Corry. Marilyn didn't get to run this year. But she'll try again in a few years. It was fun to cheer on our friends.

The girls will be starting school on August 25th. I'll admit its still July and I already miss homeschooling them. Even though I've been doing bits and pieces of stuff with them throughout the summer. I'm not sure how to let go. I really don't. I'm sure I'll manage somehow. Right? I think I may just keep Maggie home. I haven't fully decided yet. I'm trying to determine if its worth sending her yet or not. I probably will but that little voice in my head or my gut feeling whatever it maybe. Is telling me to keep her home, yet at the same time she needs to get out a little bit. Maggie's life has been being at home and hospitals. She doesn't know how to play with children her age at all. She shuns anyone who isn't mom, dad, or grandma. So I feel like I'm in a pickle in a way I guess.

Well time to end it here. Its almost midnight. I need to quit staying up so late.

Monday, June 14, 2010

Its Summer Time!


All I can say is Wohoo! This is my favorite time of the year. Its warm, there is no snow, and lots of fun things to do throughout the summer. We've started out our summer with the first Vacation Bible School of the year. I wished I could say I have pictures but I don't. Our flash on our camera broke so its hard to get good pictures on it. The girls had tons of fun with the Egyptian themed VBS this year. They are looking forward to more throughout the summer. The girls are also participating in the free lunch program at the YMCA. They get a free lunch and swim or gym. They enjoy that a lot. Its a shame more people don't take advantage of it. The food has really improved from last year. Last year was mostly sandwhiches, which of course were made with white bread. My girls aren't used to that. I've always used wheat bread. This year they have had chicken alfredo, spaghetti and lasagna to name a few things.

We are also going to Cincinnati here with Maggie on Wednesday. This is a 'business' trip only. Meaning that we are going down for medical stuff and not for pleasure. I'm hoping we can get a plan going otherwise I'm not sure if Maggie will be able to attend preschool or not. We'll be there for about 10 /11 days so I'm hoping something will be accomplished there for being there down that length of time. I'll admit I look forward to going though because Cincinnati is really a nice place. We will be staying at the Raddisson hotel, which is located in downtown Cincy. So we'll be closer to the hospital this time.

I will admit that this summer is already going by super quick. By the time we get back from Cinncinati it will be almost July. Then we'll have August and then its back to school! Such a short amount of time to enjoy the summer. Which also leads to the fair! The Spartansburg fair is always so much fun. We've been going to this fair for a little over 12 years and its always a great way to end summer vacation. The fair isn't a big one , but its just right. Of course it gives us all summer long to work on our crafts and grow our vegtable to enter into the fair. The girls always enjoy that part. Which reminds me, I need to get the fair book so we can go down our list of stuff. I've also was inspired to get our tags for our entries in such a neat way. There are a few families that enter under ever catagory. They come down , get the entry tickets , and then put them on everything before they even come to the fair. So simple, yet so inspiring. So that will be our method of delivery. It will make it so much easier. Each year we go and get the entry tickets and sift through them only to find out that we forgot something at home or we take up to much time in line.

Well that's it folks. Summer is hear and its meant to be enjoyed! So we definitely plan on enjoying it that's for sure.

Thursday, June 3, 2010

Pennywise Give a Way


Why not do something fun and educational this summer? Sign up for the Pennywise Giveaway. I copied and pasted the info from their blog as I don't know much about the item other then it looks pretty cool if you like to disect dead things.

This week at PennywiseLearning.com, we’re giving away an Ein-O Science Nature Explorer kit.

Explore 10 Gritty Activities

- Nature Lab (plants)
– Growing Plants
- Plant Survivors
- Bug Eye
- Nature Lab (bugs)
- Light Shelter
- Antzville
- Germiniator Lab
- Plant Preservations
- Bug Viewer


Visit the Pennywise Blog to enter today...

Monday, May 17, 2010

If you teach a 3yr old a Kata?


If you teach a 3yr old a Kata , can they do it? Absolutely. Tonight Miss Maggie impressed me by learning her very first karate kata at the tender age of three. Of course she will need to keep practicing it and refine it but I was so proud of her.

Maggie looked so darned cute in her karate Gi and her Sensei thought it was the cutest thing he has ever seen. He's also convinced it helped her do better with her karate too. I'm also so proud of how far she has come as well. When we first started Maggie was so scared of the Sensei's. She was scared to take gymnastic class. She's been scared to do most things. But now this evening I was able to sit and visit with a friend of mine while Maggie lucked out and had one on one attention with her class since the other two kids didn't show up this evening. She had her teachers all to herself. She didn't cry or anything. She is even going and doing her gymnastics all by herself. I no longer have to sit next to her to do warm ups and there are no tears. Maggie still has a long way in learning to trust those who aren't her mom, dad or grandma. But this sure is one awesome positive start that's for sure.


Maggie loves her karate class as well as the older girls. They are determined to get their Green Belt. I wish I could help them more at it. I've been able to find a few videos on the strikes, kicks and such that they need to know. But not to much. If I could just find a good video on Goshin JuJitsu to help us practice more.
In all actuality I need to get my butt moving and start taking karate myself. I've held off because I don't have anyone to watch Maggie after her class. But if there is a will there is a way that's for sure.

Dishonest Curriculum Sellers

Okay. Well I can't post who they are on other boards. But this is my blog and I will all let you know that I just have delt with one just recently.
I had never bought from Homeschool Classifieds before and was looking for a cheap copy of the Saxon 6/5 book to use with Marilyn over the summer to catch her up in math a bit here.

So I responded to an add where someone was selling the tests, answer key and book for $13. What a good deal I thought. I patiently waited for my books and they did come. Problem was when I looked at the package it was to small to be holding three books. It had a small tear but nothing big enough for a book to fall out of. Surely the seller must have packaged it seperately. So the good seller and buyer I am I promptly emailed the person to see if I just needed to wait for the student book.

Nope. She responds with I sent the book with the others. Umm, nope. I would know if there was three books. I would have told her I recieved three books and to have a great day. So being the person I am I ask her to check to make sure the book didn't get taken off the pile by a rouge toddler or child. I had that happen to me once when I sold something. Here to find out my toddler took it out of the box and hid it under her 3rd sister's bed. I promptly found the book and sent it to the person and profusely apologized. Had I not found the book I would of refunded that part of the money so the buyer could of found another book.

This transaction did not go this way at all. I was pretty much had. The woman never apologized once for the book not being there in the first place. I even kindely took pictures so she could see that it didn't fall out of the package and that there was no possible way she of packed three books in this package. I also asked if it was the packaging she packed it in. Which by the way DONOT wrap books in a grocery bag and expect it to come through the postal system unharmed in anyway. Know that if you sell something I bet that person would rather have to take a pair of scissors to get through the layers of packaging tape that you wrapped around it then to have a packaged damaged or a book lost or whatever.

Anyways so the woman insisted she put the book in there and that it was my problem and she wasn't going to do anything further to help the problem. Even after I told her I spent my last $13 on school books. It is my last because I don't want to buy anymore school books with my girls going to attend brick and mortar school this year.

The moral of this story is if you can't be honest, don't sell. Homeschooling families aren't made of money and we need to get the curriculum for our children for a reason. Also don't sugar coat it and tell the person who bought from you if your co-op has an extra book that you would send it. What about homeschooling boards that sell these items? You could have easily have gone on Homeschool Classifieds, Well Trained Mind, Vegsource to find another book to send to me. I took the time to find you so I could buy my wares from you.
Plus if you are a dishonest seller, know that the money you are taking is the last of what someone may have for a while..
Isn't that right ahall003@verizon.net????