Sunday, August 1, 2010

3 more weeks!

I can't believe in three more weeks the girls will be going back to school. Not so sure about whether Maggie will venture off to preschool yet or not, but the other three will be going.

We've been doing some school shopping and getting prepared. The only think left are book bags, lunch boxes, and school uniforms and shoes. The girls are really excited yet at the same time a little nervous with this new journey. I know they will do absolutely fine.

Unfortunatley Maggie isn't any better off from our trip to Cincinnati at the moment. Don't get me wrong I am so happy that she isn't pooping 24/7. But she isn't out of diapers. We basically traded in one problem for another of course. So we get the constant pooping out of the way but add in cathing every four hours to keep her bad kidney from damaging her good kidney. Plus the fact that we aren't quite sure what to think of the motility problems she has been having. Hopefully we'll get the results of that sometime this week and we can get it figured out. If her blood work doesn't show anything we will do a trial of Flagyl and see if it helps at all or not. If that doesn't help then her GI would like to scope and see if this is allergy related. Sometimes allergy cells can get into the esophagus and GI tract and can lead to diarreaha ( a.k.a hypermotility). If nothing shows up with all of that then her GI suggests looking into her motility then. Even so if it happens to be motility related its not going to matter what type of testing we really do because there really isn't much to do to fix it, other then what we are doing now(Immodium and Enemas). If this is the case that will really stink for Maggie. Even though we went to Cincinnati, saw the Colorectal guru guys and went through the whole bowel managment program. It doesn't mean that Maggie still won't have accidents, and we all know how embarrassing accidents are. The older she gets the more its going to matter to her.

I can say if we do manage preschool for Maggie this year I will guarentee that it will be the only grade she attends brick and mortar school. With all of the hassle this has been, trying to come up with ways for diapering, which turned out going to Cincinnati. Then adding the cathing, trying to get a nurse for her to do this, insurance , insurance denials,. Its just not worth it in the end. Its a darned shame because Maggie will have so much to offer the world, yet I find that the world has nothing to offer her.

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